Table 9.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1997 to 2006

Liver Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1997 1998 1999 2000 2001 2002 2003 2004 2005 2006
Total Patients 14,883 17,732 20,967 23,395 25,524 26,149 25,703 26,363 26,654 26,811
Deaths 1,274 1,565 2,022 2,021 2,322 2,161 2,092 2,152 2,133 1,935
Rate 155.8 152.5 159.3 136.1 137.0 128.8 127.3 129.1 128.0 116.8
Non-Cholestatic Cirrhosis Patients 9,046 11,129 13,315 14,999 16,433 16,643 16,286 16,938 17,423 17,706
Deaths 787 986 1,310 1,357 1,549 1,356 1,325 1,410 1,435 1,254
Rate 153.6 150.3 158.9 139.0 139.5 122.8 121.6 126.3 126.4 109.4
Cholestatic Liver Disease/Cirrhosis Patients 1,783 1,947 2,199 2,355 2,455 2,524 2,456 2,430 2,394 2,379
Deaths 85 130 175 161 179 164 138 144 131 127
Rate 79.8 102.8 120.8 100.0 100.6 93.3 79.5 84.3 79.1 77.1
Acute Hepatic Necrosis Patients 933 1,065 1,278 1,433 1,524 1,570 1,471 1,480 1,430 1,328
Deaths 147 146 170 143 157 179 148 149 128 132
Rate 440.1 314.5 273.1 192.3 178.0 210.4 181.4 187.1 171.2 186.8
Biliary Atresia Patients 466 501 543 565 612 628 601 601 595 556
Deaths 16 22 22 23 33 23 16 11 19 21
Rate 62.2 79.4 70.9 66.5 82.1 58.5 40.2 28.7 51.7 61.1
Metabolic Diseases Patients 398 418 444 479 513 504 486 482 517 513
Deaths 37 36 33 34 28 40 38 44 36 38
Rate 189.2 160.2 132.7 118.5 86.2 129.0 139.6 160.6 124.2 143.3
Malignant Neoplasms Patients 173 220 299 335 411 497 484 573 635 746
Deaths 12 20 27 26 43 45 31 29 27 28
Rate 172.9 177.9 174.1 137.3 176.7 199.5 152.4 139.5 125.9 123.4
Other Patients 1,517 1,869 2,303 2,646 2,992 3,207 3,383 3,367 3,180 3,152
Deaths 129 156 217 235 282 301 336 318 300 286
Rate 158.1 152.5 166.4 152.2 154.5 161.8 186.1 172.0 169.7 169.4
Not Collected Patients 74 64 58 54 50 46 40 39 38 34
Deaths 8 3 3 4 4 1 1 1 1 -
Rate 117.1 49.9 53.9 78.7 84.3 24.0 25.4 26.6 27.8 -
Unknown Patients 493 519 528 529 534 530 496 453 442 397
Deaths 53 66 65 38 47 52 59 46 56 49
Rate 213.1 241.5 210.9 120.7 137.5 171.6 224.2 187.8 247.3 252.3


Source: OPTN/SRTR Data as of May 1, 2007.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.