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Table 9.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1999 to 2008

Liver Waiting List

Primary Diagnosis Year
1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Total Patients 20,965 23,390 25,517 26,131 25,677 26,330 26,585 26,695 26,503 26,407
Deaths 2,018 2,019 2,325 2,161 2,094 2,164 2,141 1,991 1,822 1,782
Rate 159.0 136.0 137.4 129.5 128.5 131.0 129.9 122.2 113.7 113.5
Non-Cholestatic Cirrhosis Patients 13,232 14,898 16,320 16,497 16,125 16,753 17,110 17,250 17,273 17,394
Deaths 1,307 1,355 1,552 1,356 1,327 1,419 1,439 1,296 1,221 1,188
Rate 159.7 139.8 141.1 124.6 123.9 129.7 129.9 117.2 111.0 109.0
Cholestatic Liver Disease/Cirrhosis Patients 2,206 2,371 2,469 2,539 2,475 2,452 2,406 2,395 2,315 2,212
Deaths 177 164 180 165 140 146 132 136 124 118
Rate 121.7 101.5 101.0 93.6 80.7 85.6 80.2 83.4 81.4 80.8
Acute Hepatic Necrosis Patients 1,262 1,407 1,485 1,532 1,435 1,431 1,388 1,289 1,249 1,122
Deaths 170 142 156 178 148 149 127 133 104 82
Rate 277.8 194.3 181.5 217.3 189.1 194.8 177.1 195.7 163.4 145.4
Biliary Atresia Patients 539 562 612 629 603 598 591 550 552 538
Deaths 22 23 33 23 16 11 18 20 14 16
Rate 71.3 66.9 82.2 58.7 40.2 28.7 49.3 58.9 44.2 54.3
Metabolic Diseases Patients 443 473 509 498 479 475 505 498 454 483
Deaths 33 34 28 40 38 44 36 38 29 33
Rate 132.8 119.5 86.9 130.3 142.4 165.1 127.9 148.0 118.2 137.3
Malignant Neoplasms Patients 306 340 423 512 509 619 720 823 931 1,212
Deaths 27 26 43 45 31 29 28 28 33 52
Rate 169.1 132.2 170.2 189.4 142.2 124.6 112.1 107.5 103.9 131.1
Other Patients 2,338 2,695 3,054 3,270 3,445 3,435 3,311 3,378 3,244 3,010
Deaths 215 233 282 301 334 319 305 290 256 249
Rate 161.8 147.7 150.7 159.0 180.8 167.5 165.1 161.5 146.6 155.1
Not Collected Patients 58 54 50 46 40 39 38 34 34 33
Deaths 3 4 4 1 1 1 1 - 1 1
Rate 53.9 78.7 84.4 24.0 25.5 26.6 27.9 - 29.9 31.3
Unknown Patients 581 590 595 608 566 528 516 478 451 403
Deaths 64 38 47 52 59 46 55 50 40 43
Rate 190.1 107.6 122.8 150.1 193.4 161.5 207.8 209.8 194.8 209.8


Source: OPTN/SRTR Data as of May 4, 2009.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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