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Table 13.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1998 to 2007

Heart-Lung Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1998 1999 2000 2001 2002 2003 2004 2005 2006 2007
Total Patients 354 347 328 299 290 260 260 223 207 182
Deaths 43 55 46 42 42 20 29 28 21 22
Rate 188.1 242.6 223.7 203.5 210.0 109.1 162.7 181.5 153.5 195.3
Congenital Disease Patients 124 119 96 72 66 52 40 16 11 10
Deaths 8 15 13 8 8 4 8 3 1 -
Rate 90.1 175.8 192.1 135.2 166.5 107.1 310.3 278.7 121.9 -
Primary Pulmonary Hypertension Patients 58 51 53 58 54 45 36 20 14 9
Deaths 13 9 9 13 9 5 3 - - 1
Rate 396.6 311.9 326.3 397.9 289.5 185.0 128.5 - - *
Cystic Fibrosis Patients 10 7 4 3 4 4 4 4 3 -
Deaths 3 3 1 - 2 - 1 - - -
Rate 576.8 * * * * * * * * -
Emphysema/COPD Patients 12 7 9 7 4 3 3 1 - -
Deaths 2 1 3 1 1 1 1 - - -
Rate 295.4 * * * * * * * - -
Retransplant/Graft Failure Patients 19 16 10 6 4 3 3 2 2 -
Deaths 2 3 1 1 1 - 1 - 1 -
Rate 178.8 370.8 311.8 * * * * * * -
Other Patients 30 29 39 40 34 37 38 31 28 29
Deaths 5 4 6 8 6 4 5 5 5 5
Rate 288.0 202.1 289.4 344.3 297.2 199.6 235.6 279.8 344.1 525.8
Not Collected Patients 5 5 5 5 5 5 5 5 4 4
Deaths - - - - - - - 1 - 1
Rate * * * * * * * * * *
Unknown Patients 96 113 112 108 119 111 131 144 145 130
Deaths 10 20 13 11 15 6 10 19 14 15
Rate 162.3 277.2 173.2 144.4 171.9 67.7 102.3 183.0 143.5 174.3


Source: OPTN/SRTR Data as of May 1, 2008.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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