Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1998 to 2007

Lung Waiting List

Primary Diagnosis (Collected for listings after 1994)		Year
Primary Diagnosis (Collected for listings after 1994)		1998	1999	2000	2001	2002	2003	2004	2005	2006	2007
Total	Patients	4,527	4,868	5,142	5,374	5,399	5,549	5,650	5,269	4,801	4,678
	Deaths	518	599	519	532	529	489	512	397	295	317
	Rate	184.9	190.5	152.6	149.1	145.0	131.5	134.9	115.2	101.7	125.7
Emphysema/COPD	Patients	1,385	1,531	1,617	1,652	1,600	1,644	1,609	1,467	1,338	1,330
	Deaths	101	112	121	104	98	98	101	71	55	56
	Rate	117.6	113.7	114.2	97.3	92.9	92.7	94.1	75.6	67.9	77.1
Cystic Fibrosis	Patients	721	765	791	793	776	766	792	723	680	627
	Deaths	102	119	105	99	87	79	81	69	34	55
	Rate	226.0	241.1	203.9	185.0	163.9	150.9	153.6	142.7	80.8	147.4
Idiopathic Pulmonary Fibrosis	Patients	591	655	732	833	921	1,012	1,060	987	942	1,016
	Deaths	108	121	109	129	155	140	153	100	87	82
	Rate	345.9	324.5	256.5	269.4	291.0	231.5	242.1	182.3	197.7	207.2
Alpha-1-Antitrypsin Deficiency	Patients	275	275	281	300	292	283	269	248	211	198
	Deaths	11	19	8	9	13	10	11	11	9	3
	Rate	59.4	98.8	40.7	43.3	62.8	49.5	55.1	60.1	58.0	23.4
Primary Pulmonary Hypertension	Patients	436	479	501	549	520	533	530	500	423	363
	Deaths	53	68	48	68	42	49	34	26	28	23
	Rate	173.2	198.4	122.4	162.2	100.9	117.4	78.1	63.9	81.1	87.9
Retransplant/Graft Failure	Patients	230	247	261	251	256	247	243	212	169	178
	Deaths	19	30	29	25	31	21	31	26	16	29
	Rate	135.6	201.5	169.7	152.4	193.7	136.4	231.7	245.1	208.4	416.8
Congenital Disease	Patients	132	130	130	111	100	99	86	78	73	64
	Deaths	19	16	11	10	10	9	5	3	3	3
	Rate	219.9	171.6	120.6	114.9	119.0	109.0	67.1	43.6	48.9	58.0
Other	Patients	526	570	650	735	781	801	841	767	681	624
	Deaths	75	75	70	81	85	79	86	66	45	37
	Rate	232.6	197.6	160.9	160.9	155.1	143.8	151.3	124.0	104.8	99.6
Unknown	Patients	231	216	179	150	153	164	220	287	284	278
	Deaths	30	39	18	7	8	4	10	25	18	29
	Rate	216.6	285.9	156.2	67.9	69.8	31.4	66.4	140.0	110.4	202.6

Source: OPTN/SRTR Data as of May 1, 2008.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.