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Table 13.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1999 to 2008

Heart-Lung Waiting List

Primary Lung Diagnosis Year
1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Total Patients 347 328 299 290 260 260 224 207 182 157
Deaths 55 46 42 42 20 29 28 21 22 15
Rate 242.6 223.7 203.5 210.0 109.1 162.7 181.5 153.5 195.3 154.8
Emphysema/COPD Patients 8 13 9 6 5 4 4 5 5 4
Deaths 1 4 1 1 1 1 - - 1 -
Rate * 546.6 * * * * * * * *
Cystic Fibrosis Patients 8 6 4 5 5 5 6 5 3 1
Deaths 3 1 - 2 - 1 1 - 1 -
Rate * * * * * * * * * *
Idiopathic Pulmonary Fibrosis Patients 6 3 2 4 6 7 6 5 4 4
Deaths 2 - - 1 - 1 2 1 - 1
Rate * * * * * * * * * *
Idiopathic Pulmonary Arterial Hypertension Patients 59 66 69 65 58 49 41 41 30 24
Deaths 10 11 15 8 5 4 2 4 6 2
Rate 290.7 301.7 359.2 190.5 133.8 110.8 67.9 176.2 443.2 170.6
Retransplant/Graft Failure Patients 12 6 5 3 2 5 2 2 2 1
Deaths 2 1 1 1 - 2 - 1 - 1
Rate 287.2 * * * * * * * * *
Congenital Disease Patients 121 113 96 101 94 90 74 63 58 55
Deaths 10 11 6 7 4 8 9 1 3 4
Rate 101.0 130.5 75.0 89.0 52.7 118.2 160.3 20.0 64.8 105.3
Other Patients 45 34 27 22 26 34 53 59 56 52
Deaths 10 4 4 3 1 2 9 10 11 6
Rate 349.1 196.3 236.1 179.3 60.8 91.7 279.4 290.2 349.5 206.7
Not Collected Patients 5 5 5 4 4 4 3 1 1 -
Deaths - - - 1 - - 1 - - -
Rate * * * * * * * * * -
Unknown Patients 83 82 82 80 60 62 35 26 23 16
Deaths 17 14 15 18 9 10 4 4 - 1
Rate 432.3 315.8 299.0 387.1 237.2 275.7 176.1 223.6 - 78.4


Source: OPTN/SRTR Data as of May 4, 2009.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

Collection of both a heart and a lung diagnosis began in 2005. Please see Technical Notes for further details.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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