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Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1999 to 2008

Lung Waiting List

Lung Diagnosis Group Year
1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Total Patients 4,868 5,141 5,374 5,399 5,549 5,650 5,269 4,798 4,676 4,119
Deaths 599 519 532 529 489 512 398 300 317 266
Rate 190.5 152.6 149.1 145.0 131.5 135.0 115.5 103.5 125.9 128.0
Group A: Obstructive Lung Disease Patients 2,121 2,267 2,349 2,312 2,331 2,283 2,081 1,873 1,797 1,578
Deaths 154 156 143 138 139 134 101 85 72 49
Rate 109.5 103.0 91.9 88.4 89.1 85.6 72.4 71.9 69.8 55.3
Group B: Pulmonary Vascular Disease Patients 607 654 687 665 686 681 661 572 492 333
Deaths 78 60 80 51 63 42 36 34 36 29
Rate 174.0 119.4 151.7 96.3 115.9 75.2 68.2 75.5 103.0 126.4
Group C: Cystic Fibrosis or Immunodef. Disorders Patients 794 824 821 805 798 813 734 684 622 522
Deaths 116 100 96 87 80 84 70 34 53 45
Rate 224.8 185.7 173.1 157.6 145.9 155.3 142.6 80.3 143.1 155.4
Group D: Restrictive Lung Disease Patients 1,097 1,180 1,331 1,436 1,570 1,729 1,691 1,582 1,670 1,606
Deaths 200 172 191 222 194 227 183 142 148 133
Rate 317.0 243.1 236.1 250.5 200.5 217.1 188.7 180.7 209.2 214.4
Group E: Age Less Than 12 Patients 110 114 107 103 90 94 89 80 86 74
Deaths 20 13 12 15 3 7 6 5 8 10
Rate 355.5 182.8 172.4 228.2 50.4 123.3 108.1 99.5 154.8 214.0
Other Diagnosis Patients 139 102 79 78 74 50 13 7 9 6
Deaths 31 18 10 16 10 18 2 - - -
Rate 358.9 274.2 195.4 297.9 261.0 699.4 270.0 * * *


Source: OPTN/SRTR Data as of May 4, 2009.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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