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Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1999 to 2008

Lung Waiting List

Primary Diagnosis Year
1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Total Patients 4,868 5,141 5,374 5,399 5,549 5,650 5,269 4,798 4,676 4,119
Deaths 599 519 532 529 489 512 398 300 317 266
Rate 190.5 152.6 149.1 145.0 131.5 135.0 115.5 103.5 125.9 128.0
Emphysema/COPD Patients 1,526 1,611 1,646 1,591 1,635 1,601 1,460 1,330 1,320 1,169
Deaths 112 121 104 98 98 101 71 55 56 37
Rate 114.1 114.6 97.5 93.5 93.2 94.5 76.0 68.1 77.6 59.4
Cystic Fibrosis Patients 753 773 775 764 755 782 715 673 622 522
Deaths 119 105 99 87 79 80 69 35 55 43
Rate 245.8 208.4 189.2 166.4 153.3 153.2 143.8 83.7 148.3 147.4
Idiopathic Pulmonary Fibrosis Patients 656 732 833 923 1,012 1,059 984 937 1,008 988
Deaths 121 109 129 156 140 153 100 89 82 81
Rate 324.3 256.2 269.4 293.2 231.5 242.3 182.5 203.6 208.0 233.4
Alpha-1-Antitrypsin Deficiency Patients 274 280 298 290 283 269 247 210 196 162
Deaths 19 8 9 13 10 11 11 9 3 1
Rate 99.3 40.8 43.4 63.2 49.5 55.1 60.3 58.3 23.5 9.0
Idiopathic Pulmonary Arterial Hypertension Patients 479 502 548 518 533 528 499 421 362 242
Deaths 69 48 67 42 49 35 27 28 23 21
Rate 200.7 122.3 159.7 100.8 117.6 80.7 66.5 81.3 88.4 118.5
Retransplant/Graft Failure Patients 270 294 282 284 272 266 232 201 209 161
Deaths 30 29 26 32 21 32 26 19 30 23
Rate 181.0 152.8 141.6 180.4 120.6 218.6 223.5 217.5 374.4 366.8
Congenital Disease Patients 126 127 109 98 96 82 76 70 61 35
Deaths 16 11 10 10 9 4 3 3 3 -
Rate 176.7 122.3 116.3 121.9 112.3 55.3 44.9 50.7 61.5 -
Other Patients 783 822 882 930 963 1,063 1,056 956 898 840
Deaths 113 88 88 91 83 96 91 62 65 60
Rate 220.1 161.0 146.3 137.4 123.3 133.4 127.7 104.7 126.3 135.4
Unknown Patients 1 - 1 1 - - - - - -
Deaths - - - - - - - - - -
Rate * - * * - - - - - -


Source: OPTN/SRTR Data as of May 4, 2009.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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