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Table 12.1a

Waiting List Patient Characteristics at End of Year

Lung Waiting List

Active Waitlist Patients, 1999 to 2008

Primary Diagnosis Year
1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Total 2,429 2,484 2,417 2,281 2,315 2,163 1,052 1,031 1,006 1,089
Emphysema/COPD 855 821 733 726 715 674 370 370 386 416
Cystic Fibrosis 443 445 430 371 369 340 166 157 144 129
Idiopathic Pulmonary Fibrosis 294 355 379 373 463 394 126 150 158 183
Alpha-1-Antitrypsin Deficiency 159 162 151 140 130 100 74 58 53 55
Idiopathic Pulmonary Arterial Hypertension 227 235 233 180 184 160 74 51 39 37
Retransplant/Graft Failure 67 64 67 63 55 64 25 44 34 33
Congenital Disease 47 57 58 51 34 26 13 15 8 2
Other 337 345 366 377 365 405 204 186 184 234
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Emphysema/COPD 35.2% 33.1% 30.3% 31.8% 30.9% 31.2% 35.2% 35.9% 38.4% 38.2%
Cystic Fibrosis 18.2% 17.9% 17.8% 16.3% 15.9% 15.7% 15.8% 15.2% 14.3% 11.8%
Idiopathic Pulmonary Fibrosis 12.1% 14.3% 15.7% 16.4% 20.0% 18.2% 12.0% 14.5% 15.7% 16.8%
Alpha-1-Antitrypsin Deficiency 6.5% 6.5% 6.2% 6.1% 5.6% 4.6% 7.0% 5.6% 5.3% 5.1%
Idiopathic Pulmonary Arterial Hypertension 9.3% 9.5% 9.6% 7.9% 7.9% 7.4% 7.0% 4.9% 3.9% 3.4%
Retransplant/Graft Failure 2.8% 2.6% 2.8% 2.8% 2.4% 3.0% 2.4% 4.3% 3.4% 3.0%
Congenital Disease 1.9% 2.3% 2.4% 2.2% 1.5% 1.2% 1.2% 1.5% 0.8% 0.2%
Other 13.9% 13.9% 15.1% 16.5% 15.8% 18.7% 19.4% 18.0% 18.3% 21.5%


Source: OPTN/SRTR Data as of May 4, 2009.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.

Includes patients listed as active status at end of year.



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