Table 9.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1996 to 2005

Liver Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1996 1997 1998 1999 2000 2001 2002 2003 2004 2005
Total Patients 12,698 14,883 17,732 20,966 23,400 25,532 26,159 25,718 26,393 26,705
Deaths 1,103 1,274 1,565 2,017 2,018 2,324 2,160 2,087 2,145 2,104
Rate 174.3 155.8 152.5 158.9 135.8 137.0 128.6 126.9 128.4 125.5
Non-Cholestatic Cirrhosis Patients 7,594 9,083 11,171 13,359 15,056 16,505 16,707 16,384 17,064 17,631
Deaths 700 787 987 1,308 1,355 1,550 1,355 1,322 1,407 1,411
Rate 182.3 153.0 149.8 158.1 138.1 138.9 122.2 120.5 125.0 122.4
Cholestatic Liver Disease/Cirrhosis Patients 1,617 1,787 1,953 2,204 2,366 2,471 2,541 2,471 2,443 2,425
Deaths 84 85 130 173 161 179 164 138 142 131
Rate 95.8 79.6 102.5 119.0 99.5 99.9 92.5 79.0 82.4 78.0
Acute Hepatic Necrosis Patients 719 936 1,075 1,284 1,442 1,546 1,599 1,501 1,520 1,474
Deaths 122 147 145 169 143 158 179 148 148 128
Rate 486.9 437.6 310.1 268.7 190.1 176.8 205.8 177.9 180.5 165.4
Biliary Atresia Patients 454 466 501 544 566 614 631 603 604 597
Deaths 11 16 22 22 23 33 23 16 11 19
Rate 47.4 62.2 79.4 70.9 66.4 81.7 58.2 40.1 28.6 51.5
Metabolic Diseases Patients 341 400 422 450 484 517 509 487 481 514
Deaths 24 37 36 33 34 28 40 38 44 36
Rate 145.6 188.9 158.5 130.3 116.4 85.3 127.6 139.2 159.7 123.2
Malignant Neoplasms Patients 161 166 211 286 317 383 466 445 523 602
Deaths 16 12 20 27 26 43 45 32 28 26
Rate 291.2 182.7 191.3 188.3 150.5 192.2 220.9 177.7 154.0 131.7
Other Patients 1,257 1,500 1,846 2,277 2,618 2,958 3,169 3,340 3,310 3,039
Deaths 98 129 156 217 234 282 301 333 318 297
Rate 157.7 159.4 154.4 168.7 153.6 156.7 164.3 187.7 175.5 174.3
Not Collected Patients 85 74 64 58 54 50 46 40 39 38
Deaths 5 8 3 3 4 4 1 1 1 1
Rate 64.2 117.1 49.9 53.9 78.7 84.3 24.0 25.4 26.6 27.6
Unknown Patients 470 471 489 504 497 488 491 447 409 385
Deaths 43 53 66 65 38 47 52 59 46 55
Rate 204.8 225.2 256.6 224.5 131.1 149.6 189.0 249.7 215.8 290.8


Source: OPTN/SRTR Data as of May 1, 2006.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31,date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.