Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1996 to 2005

Lung Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1996 1997 1998 1999 2000 2001 2002 2003 2004 2005
Total Patients 3,545 4,018 4,528 4,870 5,145 5,377 5,403 5,554 5,656 5,280
Deaths 420 437 520 600 518 532 529 489 514 394
Rate 206.9 184.5 185.6 190.7 152.2 149.0 144.8 131.3 135.2 113.7
Emphysema/COPD Patients 1,044 1,170 1,395 1,543 1,637 1,668 1,616 1,663 1,628 1,480
Deaths 59 87 101 112 121 104 98 98 101 69
Rate 97.2 122.8 116.7 112.7 113.0 96.4 92.0 91.7 93.5 72.7
Cystic Fibrosis Patients 566 658 733 778 809 813 797 792 817 743
Deaths 89 85 103 120 104 99 87 79 81 69
Rate 288.5 225.5 224.4 238.0 196.8 180.4 159.3 146.0 149.1 139.3
Idiopathic Pulmonary Fibrosis Patients 409 474 591 657 735 838 929 1,031 1,075 1,008
Deaths 76 83 108 121 109 129 155 140 153 101
Rate 387.6 341.6 345.9 323.8 254.9 267.3 288.0 227.3 238.5 180.2
Alpha-1-Antitrypsin Deficiency Patients 233 265 278 278 284 302 296 286 272 252
Deaths 14 14 11 19 8 9 13 10 11 11
Rate 97.8 87.3 58.9 97.7 40.3 43.0 62.3 49.2 54.5 59.0
Primary Pulmonary Hypertension Patients 352 399 442 484 506 553 528 543 537 509
Deaths 41 46 53 68 48 68 42 49 34 25
Rate 174.4 168.2 171.9 196.2 121.5 161.2 99.3 115.3 76.8 60.3
Retransplant/Graft Failure Patients 215 219 211 223 234 222 218 199 194 168
Deaths 33 21 20 30 29 25 31 21 33 24
Rate 265.9 165.1 156.8 228.1 192.1 174.6 228.3 172.7 302.9 279.9
Congenital Disease Patients 122 135 132 129 129 113 104 104 92 85
Deaths 13 17 19 16 11 10 10 9 5 3
Rate 173.5 196.2 219.9 172.3 120.6 113.1 114.8 104.4 62.8 40.0
Other Patients 390 463 523 569 647 735 782 796 839 766
Deaths 70 59 75 75 70 81 85 80 86 66
Rate 323.4 226.5 232.3 198.2 160.7 160.9 155.0 146.0 151.8 124.4
Unknown Patients 214 235 223 209 164 133 133 140 202 269
Deaths 25 25 30 39 18 7 8 3 10 26
Rate 200.8 189.2 225.4 298.3 171.4 74.6 79.5 26.4 72.3 155.9


Source: OPTN/SRTR Data as of May 1, 2006.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31,date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.