Table 12.1a

Waiting List Patient Characteristics at End of Year

Lung Waiting List

Active Waitlist Patients, 1996 to 2005

Primary Diagnosis Year
1996 1997 1998 1999 2000 2001 2002 2003 2004 2005
Total 1,719 1,912 2,277 2,429 2,484 2,417 2,281 2,315 2,164 1,053
Emphysema/COPD 541 585 751 855 822 733 727 716 676 373
Cystic Fibrosis 339 368 429 443 445 430 371 369 339 164
Idiopathic Pulmonary Fibrosis 180 215 281 294 356 379 373 463 391 126
Alpha-1-Antitrypsin Deficiency 132 134 164 159 161 152 141 130 101 75
Primary Pulmonary Hypertension 173 192 221 227 235 233 180 186 159 74
Retransplant/Graft Failure 45 44 52 60 54 62 58 55 65 23
Congenital Disease 70 70 49 47 57 58 51 34 28 15
Other 179 239 271 291 326 340 345 323 318 145
Unknown 60 65 59 53 28 30 35 39 87 58
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Emphysema/COPD 31.5% 30.6% 33.0% 35.2% 33.1% 30.3% 31.9% 30.9% 31.2% 35.4%
Cystic Fibrosis 19.7% 19.2% 18.8% 18.2% 17.9% 17.8% 16.3% 15.9% 15.7% 15.6%
Idiopathic Pulmonary Fibrosis 10.5% 11.2% 12.3% 12.1% 14.3% 15.7% 16.4% 20.0% 18.1% 12.0%
Alpha-1-Antitrypsin Deficiency 7.7% 7.0% 7.2% 6.5% 6.5% 6.3% 6.2% 5.6% 4.7% 7.1%
Primary Pulmonary Hypertension 10.1% 10.0% 9.7% 9.3% 9.5% 9.6% 7.9% 8.0% 7.3% 7.0%
Retransplant/Graft Failure 2.6% 2.3% 2.3% 2.5% 2.2% 2.6% 2.5% 2.4% 3.0% 2.2%
Congenital Disease 4.1% 3.7% 2.2% 1.9% 2.3% 2.4% 2.2% 1.5% 1.3% 1.4%
Other 10.4% 12.5% 11.9% 12.0% 13.1% 14.1% 15.1% 14.0% 14.7% 13.8%
Unknown 3.5% 3.4% 2.6% 2.2% 1.1% 1.2% 1.5% 1.7% 4.0% 5.5%


Source: OPTN/SRTR Data as of May 1, 2006.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.

Includes patients listed as active status at end of year.