Table 11.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1996 to 2005

Heart Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1996 1997 1998 1999 2000 2001 2002 2003 2004 2005
Total Patients 7,133 7,257 7,602 7,458 7,202 7,158 6,932 6,546 6,236 5,924
Deaths 802 838 859 804 686 716 631 586 525 465
Rate 227.4 226.5 218.7 198.5 176.6 181.8 165.9 165.2 157.7 152.3
Coronary Artery Disease Patients 2,886 2,930 3,098 3,103 3,050 2,993 2,844 2,592 2,358 2,186
Deaths 323 348 342 351 301 326 244 230 197 145
Rate 227.3 228.7 211.7 207.5 180.0 193.4 153.5 160.2 150.1 122.1
Cardiomyopathy Patients 3,027 3,120 3,263 3,211 3,081 3,068 2,985 2,886 2,811 2,700
Deaths 306 334 364 290 248 256 235 216 199 184
Rate 197.9 206.5 209.7 161.3 146.1 148.2 139.9 135.4 130.6 131.8
Congenital Heart Disease Patients 350 352 362 367 393 435 466 445 477 477
Deaths 71 57 59 58 55 58 75 63 62 58
Rate 574.9 403.6 409.6 332.0 330.6 316.2 370.2 321.5 321.2 290.4
Retransplant/Graft Failure Patients 281 305 321 261 262 260 228 233 212 226
Deaths 45 36 40 40 37 40 34 39 30 39
Rate 385.0 282.9 273.0 321.6 310.1 344.2 323.6 356.8 307.5 409.6
Valvular Heart Disease Patients 161 163 157 162 172 160 154 155 136 131
Deaths 22 26 20 14 21 14 17 15 14 10
Rate 269.3 347.8 256.5 169.9 217.1 157.9 209.6 192.6 183.0 140.8
Other Patients 161 128 124 125 112 121 127 116 136 124
Deaths 22 13 14 16 14 13 19 9 9 14
Rate 276.1 202.6 224.8 263.5 270.8 225.2 304.9 154.3 145.0 244.3
Unknown Patients 267 259 277 229 132 121 128 119 106 80
Deaths 13 24 20 35 10 9 7 14 14 15
Rate 81.8 157.3 136.7 296.0 124.8 113.0 85.1 189.3 219.6 324.5


Source: OPTN/SRTR Data as of May 1, 2006.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31,date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.