Table 13.1a

Waiting List Patient Characteristics at End of Year

Heart-Lung Waiting List

Active Waitlist Patients, 1995 to 2004

Primary Diagnosis Year
1995 1996 1997 1998 1999 2000 2001 2002 2003 2004
Total 155 175 164 179 136 123 119 107 106 83
Congenital Disease 87 99 93 94 52 37 32 32 32 29
Primary Pulmonary Hypertension 30 30 31 33 24 29 34 23 28 15
Cystic Fibrosis 7 6 5 7 2 3 2 2 3 2
Emphysema/COPD 4 4 5 7 7 8 3 3 2 1
Other 6 13 13 17 10 17 17 11 12 8
Unknown 21 23 17 21 41 29 31 36 29 28
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Congenital Disease 56.1% 56.6% 56.7% 52.5% 38.2% 30.1% 26.9% 29.9% 30.2% 34.9%
Primary Pulmonary Hypertension 19.4% 17.1% 18.9% 18.4% 17.6% 23.6% 28.6% 21.5% 26.4% 18.1%
Cystic Fibrosis 4.5% 3.4% 3.0% 3.9% 1.5% 2.4% 1.7% 1.9% 2.8% 2.4%
Emphysema/COPD 2.6% 2.3% 3.0% 3.9% 5.1% 6.5% 2.5% 2.8% 1.9% 1.2%
Other 3.9% 7.4% 7.9% 9.5% 7.4% 13.8% 14.3% 10.3% 11.3% 9.6%
Unknown 13.5% 13.1% 10.4% 11.7% 30.1% 23.6% 26.1% 33.6% 27.4% 33.7%


Source: OPTN/SRTR Data as of May 2, 2005.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.

Includes patients listed as active status at end of year.