Table 12.1b

Waiting List Patient Characteristics at End of Year

Lung Waiting List

Active and Inactive Patient Comparison, 2000 to 2004

Primary Diagnosis Active Inactive All
2000-2004 2004 2000-2004 2004 2000-2004 2004
Total 11,666 2,167 6,904 1,684 18,570 3,851
Emphysema/COPD 3,753 701 1,827 403 5,580 1,104
Cystic Fibrosis 2,030 354 895 206 2,925 560
Idiopathic Pulmonary Fibrosis 2,006 406 962 268 2,968 674
Alpha-1-Antitrypsin Deficiency 707 105 383 104 1,090 209
Primary Pulmonary Hypertension 1,031 169 1,260 308 2,291 477
Congenital Disease 249 33 262 60 511 93
Other 1,667 318 1,053 269 2,720 587
Unknown 223 81 262 66 485 147
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Emphysema/COPD 32.2% 32.3% 26.5% 23.9% 30.0% 28.7%
Cystic Fibrosis 17.4% 16.3% 13.0% 12.2% 15.8% 14.5%
Idiopathic Pulmonary Fibrosis 17.2% 18.7% 13.9% 15.9% 16.0% 17.5%
Alpha-1-Antitrypsin Deficiency 6.1% 4.8% 5.5% 6.2% 5.9% 5.4%
Primary Pulmonary Hypertension 8.8% 7.8% 18.3% 18.3% 12.3% 12.4%
Congenital Disease 2.1% 1.5% 3.8% 3.6% 2.8% 2.4%
Other 14.3% 14.7% 15.3% 16.0% 14.6% 15.2%
Unknown 1.9% 3.7% 3.8% 3.9% 2.6% 3.8%


Source: OPTN/SRTR Data as of May 2, 2005.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.