Table 12.1a

Waiting List Patient Characteristics at End of Year

Lung Waiting List

Active Waitlist Patients, 1995 to 2004

Primary Diagnosis Year
1995 1996 1997 1998 1999 2000 2001 2002 2003 2004
Total 1,457 1,718 1,913 2,278 2,430 2,485 2,418 2,281 2,315 2,167
Emphysema/COPD 468 553 595 761 873 842 746 737 727 701
Cystic Fibrosis 293 349 378 440 455 454 444 391 387 354
Idiopathic Pulmonary Fibrosis 150 183 218 286 305 364 388 379 469 406
Alpha-1-Antitrypsin Deficiency 94 134 134 170 162 165 157 146 134 105
Primary Pulmonary Hypertension 170 176 198 228 235 243 241 187 191 169
Congenital Disease 56 72 73 49 49 60 65 55 36 33
Other 153 182 244 278 294 330 346 349 324 318
Unknown 73 69 73 66 57 27 31 37 47 81
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Emphysema/COPD 32.1% 32.2% 31.1% 33.4% 35.9% 33.9% 30.9% 32.3% 31.4% 32.3%
Cystic Fibrosis 20.1% 20.3% 19.8% 19.3% 18.7% 18.3% 18.4% 17.1% 16.7% 16.3%
Idiopathic Pulmonary Fibrosis 10.3% 10.7% 11.4% 12.6% 12.6% 14.6% 16.0% 16.6% 20.3% 18.7%
Alpha-1-Antitrypsin Deficiency 6.5% 7.8% 7.0% 7.5% 6.7% 6.6% 6.5% 6.4% 5.8% 4.8%
Primary Pulmonary Hypertension 11.7% 10.2% 10.4% 10.0% 9.7% 9.8% 10.0% 8.2% 8.3% 7.8%
Congenital Disease 3.8% 4.2% 3.8% 2.2% 2.0% 2.4% 2.7% 2.4% 1.6% 1.5%
Other 10.5% 10.6% 12.8% 12.2% 12.1% 13.3% 14.3% 15.3% 14.0% 14.7%
Unknown 5.0% 4.0% 3.8% 2.9% 2.3% 1.1% 1.3% 1.6% 2.0% 3.7%


Source: OPTN/SRTR Data as of May 2, 2005.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.

Includes patients listed as active status at end of year.