Table 12.1

Waiting List Patient Characteristics at End of Year, 1994 to 2003

Lung Waiting List

Primary Diagnosis Year
1994 1995 1996 1997 1998 1999 2000 2001 2002 2003
Total 1,570 1,861 2,237 2,586 3,058 3,311 3,520 3,685 3,717 3,836
Emphysema/COPD 519 603 721 820 1,019 1,127 1,151 1,125 1,113 1,134
Cystic Fibrosis 267 317 401 464 546 571 586 613 592 586
Idiopathic Pulmonary Fibrosis 188 236 267 322 398 441 503 563 606 688
Alpha-1-Antitrypsin Deficiency 128 130 170 171 204 202 209 219 213 221
Primary Pulmonary Hypertension 177 215 269 315 353 381 418 448 439 448
Congenital Disease 75 92 105 108 94 97 111 117 119 116
Other 198 256 288 369 430 481 530 590 622 630
Unknown 18 12 16 17 14 11 12 10 13 13
Total (%) 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%
Emphysema/COPD 33.1% 32.4% 32.2% 31.7% 33.3% 34.0% 32.7% 30.5% 29.9% 29.6%
Cystic Fibrosis 17.0% 17.0% 17.9% 17.9% 17.9% 17.2% 16.6% 16.6% 15.9% 15.3%
Idiopathic Pulmonary Fibrosis 12.0% 12.7% 11.9% 12.5% 13.0% 13.3% 14.3% 15.3% 16.3% 17.9%
Alpha-1-Antitrypsin Deficiency 8.2% 7.0% 7.6% 6.6% 6.7% 6.1% 5.9% 5.9% 5.7% 5.8%
Primary Pulmonary Hypertension 11.3% 11.6% 12.0% 12.2% 11.5% 11.5% 11.9% 12.2% 11.8% 11.7%
Congenital Disease 4.8% 4.9% 4.7% 4.2% 3.1% 2.9% 3.2% 3.2% 3.2% 3.0%
Other 12.6% 13.8% 12.9% 14.3% 14.1% 14.5% 15.1% 16.0% 16.7% 16.4%
Unknown 1.1% 0.6% 0.7% 0.7% 0.5% 0.3% 0.3% 0.3% 0.3% 0.3%

Source: OPTN/SRTR Data as of May 3, 2004.

(%) = Percentages are based on totals including missing and unknown.

(-) = None in category.